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Find Your Community

Below is a list of existing PEER Community sites as well as new PEER Communities that are now in active development. Where communities are presently open, a link is provided to the Live registry; and if you or a family member are affected by one of these conditions, we encourage you to visit that page.

 


Mitochondrial Disease Community Registry
Our Disease. Your Information. The Community's best hope for treatments and cures!

 


Pseudoxanthoma Elasticum (PXE) Registry
We do not understand how PXE progresses, or how to slow it down. It is time to change that! Please join our effort to complete the puzzle!

 


Joubert Syndrome Link to Information & Family Exchange (JSLIFE)®
Together we can advance research and improve care.

 


Alstrom Research Connect - ARC
Help spark innovation for all!

 


Dyskeratosis Congenita Outreach
May you never be alone.

 


Hepatitis Patient Registry Network (HepPRN)
Together we can accelerate our quest to save lives and reduce or eliminate hepatitis

 


Gastroparesis Patient Association for Cures and Treatments (G-PACT) Registry
You have a unique opportunity to communicate with researchers.

 


NGF Gaucher Network Registry
The information we provide can be a vital force in helping to advance research.

 


Free The Data
Genetic information is more valuable when shared

 


Coalition for Pulmonary Fibrosis (CPF)
Join us in stopping Pulmonary Fibrosis!

 


Inflammatory Breast Cancer Research Foundation Registry
Committed to finding the cause! Focusing on research and awareness.

 


MLD Foundation
We C.A.R.E.

 


Celiac Disease Foundation
Celiac Disease Foundation drives diagnosis and treatment of celiac disease.

 


AXYS
Association for x and y chromosome variations